Saturday, 13 June 2015

Medication, Music and crossed fingers

Firstly, I would like to apologise for the absence on so many forums of late. As many people already know, I am going through a medication change for my fibromyalgia, which has been knocking me out. I am switching from pregabalin to gabapentin, as I was experiencing pronounced muscular jerking, which got worse as I increased the dose of pregabalin. My GP assures me that although this can be a side effect with the gabapentin, it is rare.

The gabapentin dose is slowly being increased until we hit the right level for me. I have to say that pain levels have already decreased a little; I am taking a total of 1500mg a day at the moment, spread out over three periods, with the option of increasing to 1800mg next Friday if I need to. I then have another appointment with my GP on the 23rd June to see how things are.

In theory I am supposed to be going to Glastonbury Festival on 24th June, as I won tickets via a competition. However, whether we actually make it there is highly debatable. Between my own health issues and Pete's current health issues it stands a good chance that we may not make it. I know that even if I am at my best, I would struggle; last time I went to a concert it was Motley Crue at the LG Arena (now Genting Arena) and even that wore me out. That was a few years back now and I have to say that I am worse now than I was then. Still, I am crossing fingers as there are a number of bands that I would LOVE to see.

I did take the time to have a good look through the accessibility information for Glastonbury. It is pretty good; there is an accessible camp ground with wheelchair accessible showers, disabled toilets and stewards to help erect tents and adult changing facilities. Wheelchair users and one PA/friend/relative can have passes to access the viewing towers that are scattered around the various stages. There is also a wheelchair accessible bus that can be used to get around and various other amenities that are laid on to help disabled people attending the festival. All in all it does sound as though they make a serious effort to make sure that it is an event that anyone can attend.

I know that even if I am at my (very rare) best and able to attend, I will spend most of the time lying down and just pay a few visits to see bands and the other sights. I also know that it would mean weeks, possibly months, of increased pain and debilitation. But...some things are worth the price you pay, you know.

No comments:

Post a Comment